Saturday, May 8, 2010

Running For My Life - Follow The Path

Non-Hodgkin’s Lymphoma is a crappy thing, even crappier when it happens to you.  I’ve been writing for about a month about my experience dealing with Non-Hodgkin’s Lymphoma. Your feedback has been encouraging, uplifting and has often made me laugh.  But it’s time to get back to writing about running, why it’s cool and the people that make it great here in southern Arizona. Even though I have to do a few things to keep my Lymphoma in remission, I'm moving and looking forward. So this will be my last entry about my ‘race’. You can start at the beginning here .

March 17, 2010

I always looked forward to this time after treatment – 30 days after my last chemo, when the drug would truly be out of my body.  I didn’t know what the results would be, but I’ve been excited to get back to running.  Running to me is about being outside, experiencing the environment with friends as much as enjoying the run.  Spending time on the treadmill 1-2 times a month just hasn’t cut it, plus I’ve been much more tired and drained than I thought.  The stories about people maintaining a normal training regimen during chemotherapy seem overwhelming to me. Lance Armstrong, you are my hero.

Mike Greene, who talked me into running high school cross country 25 years ago, and I have kept in touch every few months for the past few years.  We talk about running together but never have since high school.  Mike has a busy family and injured his foot a few years ago.  I called him after my good news and suggested we go for a run, ‘for real’ this time.  I tell him I need to jog-walk for a while, but would be happy to at least start with him.  He is in the same position as me, excited to get back into running but has been looking for a slow training partner, so we fit perfectly.

March 24, 2010

I lace up my running shoes in anticipation of getting back to what I love and take note that I still can’t move my left big toe. I smile, remembering the odyssey this numb toe started me on, the questions it made me ask.  I was concerned then, but today I don’t worry so much about it, because my future has changed.  I don’t know what the it will bring, but if I can get through this crap, I can do just about anything. I’ve met some amazing people during this journey and I’ve learned from them that your life is now defined by a ‘new-normal’, the state that your life is forever in post treatment.

From the Tucson Racquet Club, we decide to follow the Rillito River Path which allows us to set an easy pace on a flat path.  A popular and busy thoroughfare for runners, bikers and walkers, the path is a perfect place for us to start our journey.  While warming up and stretching, we laugh about our decision to join the cross country team in the fall of 1981, oh so many years ago.

I’m excited to get started and we start our walk/jog on the path, with good conversation, acknowledging those coming the other way.  A pleasant looking man and his wife are walking toward us, and as we say hello, I realize that it is John Brooks, our cross country coach at Sabino High School with his wife Carol.  What sort of universal cosmic karma has placed the three of us together at this point nearly 30 years later?  John Brooks, or Mr. Brooks as he is forever known, is the sort of teacher and mentor that you remember for the rest of your life.  Everybody has those 1 – 2 teachers in their lives.  He is mine.

We exchange pleasantries, talking about running and the beautiful weather.  I tell him in a few short minutes about my recent battle and he encourages me to keep up the good fight.  A two-minute conversation at best, with the man that has influenced my life immensely, and we’re off to run and walk.

Mike and I exchange emails a few days later, amazed at the wonderful coincidence of this meeting. But as I reflect on this, I realize there are powerful forces at work in the universe. While Non-Hodgkin’s Lymphoma may have put me on a year-long journey, I realize I have really completed a 30-year journey.  That moment of panic from a scared and nervous 14-year-old, deciding to join the high school cross country team, has given me the tools to complete the most important race of my life as a 43-year-old man.
That decision – to become a runner – has come to define me.  Being a runner provided me with the skills, fortitude and competitiveness to win this race against Non-Hodgkin’s Lymphoma and chemotherapy.  The fact that I started both of my running careers, in 1981 and 2010, with the same people has to mean something, right?  Mike Greene and Mr. Brooks set me on this path. I was lucky enough to begin one journey with a good friend and mentor, but a second time?  Running with the life-long friend that cajoled me into going out for the team in the first place, and then ‘randomly’ meeting the man that started me on the path nearly 30 years ago? It’s not random and I realize there is a plan, a path to follow.

I am forever changed, but I will always be a runner.

Tim Bentley, Mr. Brooks, Dr. Toby Freebourn, Michael Greene, and Ross Martin.
12-2 in 1984 and still in love with running in 2011.

10 comments:

  1. Tim, your Mother and Mary told me about your articles and I've just completed reading them. I'm a cancer survivor myself, but did not have to go through chemo, so your diary had lots of new information. I am a "CanCare" volunteer; this is the group that pairs you up with someone who has the same cancer you had. My function is to listen and encourage. And, in your very personal way, that's what you're doing. You are an excellent communicator; I'm confident that all your readers--especially those who have or have had cancer--find great pleasure in reading your articles.

    Good luck. I understand cancer is now in the past for you. Keep it there, and, as you said in one of your articles, "kick ass" to the future!

    ReplyDelete
  2. John--

    Thank you for the kind words, and wonderful insights as usual.  I hope that this does help people, let them know the feelings they have are part of the process.

    Congratulations on beating cancer.  I always thought runners were the toughest people I knew  - I know now that it is cancer fighters and survivors.

    Hope to see you soon.

    ReplyDelete
  3. Just finished reading the whole blog...it was great, beautifully written...and now I know what I probably have ahead of me.  I just wrote to you back after you 4/10 or 4/11 blog...tomorrow will tell me what my next step will be.  But, thanks to you, I now know what might be ahead...and, as they say...the devil you know is better than the one you don't know...or something like that!!!  Glad you are marching, running, on your way back to great health.  Thank you for sharing your life with us.

    ReplyDelete
  4. Hi Tim~Like you, running defines me.  I had knee surgery last week and I don’t know if I will be able to run anymore and I’ve been extremely upset about it.  What will I do if I can no longer run?  That is who I am.  Then I read your blog and it snapped me back to reality, to see the big picture, to know that what I am dealing with is NOTHING compared to what you have been dealing with.  So, thank you for taking the time to write and share your story. PS  I also live in Tucson and am a SAR member. Another PS: I am a long time volunteer and running coach with Team in Training/Leukemia & Lymphoma Society.  You may have heard of it.  There is a core group of us in Tucson and thousands of others like us all over the U.S. and Canada and we have been working feverishly for over 20 years now to raise money to fund research to find a cure for blood cancers.  Keep the faith! Lauren DeLillo

    ReplyDelete
  5. Lauren--

    You will be able to run again.  I had knee surgery 5-6 years ago - just follow the physical therapy plan and you'll be back on the road in no time.

    I'm very familiar with Team In Training, and even talked to them about volunteering as a coach.  I noted how impressed I was with them at the end of this entry about running in Sabino Canyon: http://tucsoncitizen.com/run/2009/07/19/sabino-canyon-splashing/

    I hope to meet you soon at a SAR event - thanks for your encouraging words.

    ReplyDelete
  6. Tim: My now 49 year-old son-in-law, Jerry was diagnosed with NHL about 15 years ago. After an agressessive treatment program including chemo and 'the works', and he has been in remission ever since.
    He is a firm believer that a positive attitude, along with a healthy, active,  lifestyle have been a big part of his continued longevity.
    Keep up the good work my friend, you've got a lot of people out there that are in your corner.
    Yer pal, Ferrari Bubba

    ReplyDelete
  7. Tim: My now 49 year-old son-in-law, Jerry was diagnosed with NHL about 15 years ago. After an agressessive treatment program including chemo and 'the works', he has been in remission ever since. He is a firm believer that a positive attitude, along with a healthy active,  lifestyle have been a big part of his continued longevity. Keep up the good work my friend, you've got a lot of people out there that are in your corner. Yer pal, Ferrari Bubba

    ReplyDelete
  8. Ferraribubba-

    When I started this journey it was scary the prevalence of this crap.  But along the way I was more often encouraged, rather than disappointed in the successful survival stories.  A new mindset,  focusing on your 'new normal' and looking to those that came before you is a good strategy.  I admire your son-in-law for kicking it's a$$, and to you for supporting him.

    Thanks for the encouraging words - Tim

    ReplyDelete
  9. Hi Tim,
    I was also diagnosed with exactly what you have except I had symtpoms.  Enough that I was in a wheelchair (maybe I transformed).  I now see Dr. Persky as well.

    For everyone here with follicular lymphoma, myself & some other patients along with the LRF are starting a support group just for Folliculars to share knowledge & stories.  All NHLs are so different & I think it's important to break it down & to constantly be in the loop.  We are in Scottsdale but willing to get together in other places, on occasion.

    If anyone is interested in participating, please email me at LaniUSA@aol.com

    ReplyDelete
  10. Lani -

    Thank you for your comment. I mentioned above how amazed (and angry) I was at the prevalence of this crap.  And yes, every NHL patient I met was a different diagnosis, had a different reaction to treatment and their own discovery process. I kept asking - 'isn't there a test, a marker, some kind of indicator so we know?'   Especially with Follicular being so a slow growing cancer, symptoms are often overlooked or under valued.

    Dr. Persky is the best - instilling long-term confidence in every patient he treats.  I valued my time with him (Nikki is awesome too, BTW).

    I support your efforts to form a support group, and would be willing to come visit if you'll let me know the times.  I invite you to participate in the CatWalk 10K Run/Walk raising funds for the AZ Cancer Center.  I'm the race coordinator and would love to see you there.  Check out the details here: http://catwalk.arizona.edu/index.php

    I admire your fortitude and courage Lani, you will be great at this.

    ReplyDelete